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The Latest Breaking News from GOSH

Breakthrough for baby with rare illness in world-first gene therapy trial

Fourteen-month-old Tomas was diagnosed with ornithine transcarbamylase (OTC) deficiency when he was a few weeks old

The Independent UK

Baby given new gene therapy in groundbreaking trial

It is hoped that the new therapy will work as well as a liver transplant for some patients.

The Independent UK

NHS doctors could ‘spend more time with patients’ thanks to AI helper

An artificial intelligence tool being trialled in the NHS picks up relevant medical information while filtering out background chatter.

The Independent UK

From analysis to the latest developments in health,
read the most diverse news in one place.

Children with aggressive blood cancer offered treatment cure hope

All youngsters in a new study have cancer that relapses or is resistant to conventional treatments, such as chemotherapy or bone marrow transplant.

The Independent UK

'It's a wonderful feeling': London surgeon tells of joy after separating conjoined twins in 14-hour operation

Professor Noor ul Owase Jeelani carried out the successful procedure in Turkey

Evening Standard

Calls for Great Ormond Street to release report into 'rogue' surgeon after probe launched

Patients suffered ‘life-changing injuries’ after being treated by Yaser Jabbar

Evening Standard

Great Ormond Street apologises after children suffered ‘severe harm’ under surgeon

NHS hospital reviews care of 700 patients after inquiry found orthopaedic doctor caused lifelong damage to some, one of whom underwent an ‘avoidable limb amputation’

The Guardian - UK

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Mother of boy with brain tumour praises 'guardian angel' play specialists at Great Ormond Street Hospital

Charity celebrates 50th anniversary of the Play team at Great Ormond Street Hospital

Evening Standard

Thousands of children still waiting average of 100 weeks for gender care

More than 5,700 of under-18s are waiting an average of 100 weeks for a first gender care appointment, data shows

The Independent UK

Father’s shock after baby’s ‘sparkly and golden’ eye turned out to be cancerous tumour

Baby Saint-Hallie diagnosed with retinoblastoma after unusual symptom appeared

The Independent UK

Powerful charity rebranding makes childhood the focus

The new logo and icons feel fresh and authentic.

Creative Bloq

UK boy has brain implant fitted to control epilepsy seizures in world first

Oran Knowlson, who could suffer hundreds of seizures a day, had neurostimulator fitted at Great Ormond Street

The Guardian - UK

World first epilepsy device fitted in boy's skull at Great Ormond Street Hospital

World-first device sends electrical signals deep into the brain to reduce seizures

Evening Standard

When there’s no commercial incentive to develop gene therapy – hospitals will try to fill the gap

Individually, rare diseases are rare, but there are so many rare diseases that over 400 million people are affected worldwide. Together, rare diseases aren’t so rare.

The Conversation

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The Guardian - UK

Imagine getting life-saving drugs to sick people without relying on big pharma? We may have found a way

An NHS trust’s attempts to bring a crucial drug to market itself is hopeful news for patients, says Dr Catriona Crombie of the medical charity LifeArc

The Guardian - UK

Great Ormond Street hoping to license gene therapy for ‘bubble baby’ syndrome

Hospital to take unprecedented step after drug firm pulled out despite successful trial of treatment

Evening Standard

Keto diet could help treat childhood epilepsy, study finds

Researchers say treatment could be used as alternative to epilepsy drugs

The Guardian - UK

Sheffield family plead for help after drug trial for boy, 11, is abruptly stopped

Harley Bond’s treatment for a form of childhood dementia ends after deal to buy drug company fell through

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news in one place.

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The Independent UK

Mother of girl, 7, who went through ‘brutal’ cancer treatment backs GOSH appeal

Daya Amole was diagnosed with neuroblastoma after her mother, Pamela, found a lump in her daughter’s abdomen when she was 11 months old.

Evening Standard

Girl, 8, first UK kidney transplant patient not to need life-long drugs in breakthrough treatment at London hospital

Aditi Shankar will not need to take drugs for life in pioneering transplant treatment at Great Ormond Street Hospital

The Independent UK

Girl, 8, first in UK to get kidney transplant without need for life-long drugs

Scrabble-loving Aditi Shankar will not need to use life-long medicine to prevent her body from rejecting the organ.

The Independent UK

Charity calls for more spending on childhood cancer research

It comes amid efforts to raise £300 million to build a state-of-the-art Children’s Cancer Centre at Great Ormond Street Hospital.

The Independent UK

Face of an NHS in crisis: Girl, 14, could be left unable to walk after brain surgery cancelled three times

Exclusive: At least 340 life-saving children’s operations were shelved from April to December 2022, writes Rebecca Thomas

Wales Online

Vanessa Feltz becomes a town crier

The star has been out spreading a summer message

Daily Mirror

Charlie Gard's parents say watching BBC drama echoing son's story was 'punch to the gut'

Connie Yates and Chris Gard were embroiled in a heartbreaking legal and medical battle over their son Charlie, who suffered from a rare genetic condition, six years ago

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