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The Latest Breaking News from GOSH

UK boy has brain implant fitted to control epilepsy seizures in world first

Oran Knowlson, who could suffer hundreds of seizures a day, had neurostimulator fitted at Great Ormond Street

The Guardian - UK

World first epilepsy device fitted in boy's skull at Great Ormond Street Hospital

World-first device sends electrical signals deep into the brain to reduce seizures

Evening Standard

When there’s no commercial incentive to develop gene therapy – hospitals will try to fill the gap

Individually, rare diseases are rare, but there are so many rare diseases that over 400 million people are affected worldwide. Together, rare diseases aren’t so rare.

The Conversation

From analysis to the latest developments in health,
read the most diverse news in one place.

Imagine getting life-saving drugs to sick people without relying on big pharma? We may have found a way

An NHS trust’s attempts to bring a crucial drug to market itself is hopeful news for patients, says Dr Catriona Crombie of the medical charity LifeArc

The Guardian - UK

Great Ormond Street hoping to license gene therapy for ‘bubble baby’ syndrome

Hospital to take unprecedented step after drug firm pulled out despite successful trial of treatment

The Guardian - UK

Keto diet could help treat childhood epilepsy, study finds

Researchers say treatment could be used as alternative to epilepsy drugs

Evening Standard

Sheffield family plead for help after drug trial for boy, 11, is abruptly stopped

Harley Bond’s treatment for a form of childhood dementia ends after deal to buy drug company fell through

The Guardian - UK

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Mother of girl, 7, who went through ‘brutal’ cancer treatment backs GOSH appeal

Daya Amole was diagnosed with neuroblastoma after her mother, Pamela, found a lump in her daughter’s abdomen when she was 11 months old.

The Independent UK

Girl, 8, first UK kidney transplant patient not to need life-long drugs in breakthrough treatment at London hospital

Aditi Shankar will not need to take drugs for life in pioneering transplant treatment at Great Ormond Street Hospital

Evening Standard

Girl, 8, first in UK to get kidney transplant without need for life-long drugs

Scrabble-loving Aditi Shankar will not need to use life-long medicine to prevent her body from rejecting the organ.

The Independent UK

Charity calls for more spending on childhood cancer research

It comes amid efforts to raise £300 million to build a state-of-the-art Children’s Cancer Centre at Great Ormond Street Hospital.

The Independent UK

Face of an NHS in crisis: Girl, 14, could be left unable to walk after brain surgery cancelled three times

Exclusive: At least 340 life-saving children’s operations were shelved from April to December 2022, writes Rebecca Thomas

The Independent UK

Vanessa Feltz becomes a town crier

The star has been out spreading a summer message

Wales Online

Charlie Gard's parents say watching BBC drama echoing son's story was 'punch to the gut'

Connie Yates and Chris Gard were embroiled in a heartbreaking legal and medical battle over their son Charlie, who suffered from a rare genetic condition, six years ago

Daily Mirror

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Chronicle Live

Charlie Gard's parents reminded of horrific court battle while watching new TV drama

Connie Yates and Chris Gard were forced to fight the NHS for the right to take their baby boy out of hospital for potentially life-saving treatment

Daily Mirror

Charlie Gard's parents relived horror of court battle while watching new TV drama

Like the family in the four-part series, Connie Yates and Chris Gard had to fight the NHS for the right to take their baby son out of hospital for potentially life-saving treatment

Daily Record

Toddler who died after contracting herpes 'didn't have immune system' to fight

Three-year-old Raffy Holliday, who was undergoing treatment for Leukemia, passed away after suffering inflammation of the brain.

Manchester Evening News

Toddler, 3, died after catching disease 70 per cent of children contract as devastated parents warn others

Raffy Holliday passed away at Great Ormond Street Hospital

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news in one place.

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Daily Mirror

Toddler, 3, dies after catching herpes as heartbroken parents issue new warning

Raffy Holliday, three, passed away at Great Ormond Street Hospital after contracting herpes. His parents are now campaigning to increase testing for the virus in hospitals

Wales Online

'Don't eat' warning to shoppers as Aldi, Lidl, Tesco, Morrisons, Waitrose and Sainsbury's pull items from shelves

The products can be returned for a refund

Wales Online

The Welsh mum running the London Marathon inspired by her son's bravery after rare syndrome diagnosis

She says her son is her 'inspiration'

The Guardian - UK

I was used as a scapegoat when Baby P died – Sunak’s attacks on social workers are dangerous

I lost my job and was vilified in the media. Social workers must stand up against baseless accusations, says former director of education and children’s social care Sharon Shoesmith

The Independent UK

GOSH Charity launches biggest-ever appeal for £300m world-leading cancer centre

The charity is aiming to raise £3.5 million for the Build it. Beat it campaign from runners taking part in the TCS London Marathon on April 23.

The Independent UK

Great Ormond Street Hospital unable to hire dentists for two years amid national staffing crisis

Exclusive: NHS’s most famous children’s hospital warns of “significant” delays in dentistry as its unable to recruit staff

Daily Mirror

Family's horror as doctors and nurses joke about 'Grim Reaper' outside cancer son's room

The family of Raffy Holiday, 3, were horrified when they overheard doctors and nurses joking about the Grim Reaper outside the hospital room of their ill little boy

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