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The Latest Breaking News from UK Biobank

UK Biobank has my data, but I’m not worried. I know the benefits are too great to consider pulling out

Longitudinal studies are a research jewel, shedding light on motor neurone disease, cot deaths, Alzheimer’s and more. Don’t let the security breach in China put you off joining one, says Guardian columnist Polly Toynbee

The Guardian - UK

UK researchers develop tool to identify people most at risk of obesity-related diseases

Data tool could help NHS prioritise who gets access to limited weight-loss medication, say scientists

The Guardian - UK

More private health records of UK Biobank volunteers appear on Chinese website

Patrick Vallance says government working with Chinese officials to remove postings from Alibaba after Biobank data breach last week

The Guardian - UK

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UK Biobank records listed for sale in China: why open data might be the answer

The chief executive of the UK Biobank, one of the world’s largest biomedical databases, recently wrote to over 500,000 participants telling them that some of their data had been made available for sale online through a Chinese website. This wasn’t a data breach or hack, but rather researchers who had…

The Conversation

Health data of 500,000 UK volunteers listed for sale on Chinese platform, alarm raised

Sensitive UK Biobank health data, potentially affecting nearly 500,000 participants, was briefly listed for sale on a Chinese marketplace. British authorities acted swiftly to remove the listings, but the incident has raised fresh concerns about the security of the vast research database.

The Times of India

Health data from UK Biobank spotted for sale in China – Government confirms medical info from 500,000 participants involved

Legitimate researchers seem to have abused their access to try and sell the files.

TechRadar

What is the UK Biobank project and what are the privacy concerns around it?

Volunteers’ data has enabled medical breakthroughs, but there are questions over how that data is protected

The Guardian - UK

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Medical data from 500,000 UK volunteers advertised for sale on a Chinese website

The health data of 500,000 UK Biobank volunteers was advertised for sale on the Chinese website Alibaba.

Euronews

Private health records of half a million Britons offered for sale on Chinese website

Technology minister tells Commons ‘de-identified’ information from UK Biobank advertised for sale on Alibaba

The Guardian - UK

Half a million Biobank members had data listed for sale, minister says

Technology minister Ian Murray said details of all half a million members of the project were found listed for sale on the website Alibaba in China.

Evening Standard

Medical data of 500,000 Brits stolen in massive breach

IN FULL

The Independent UK

Ministers told British public must be better protected after UK Biobank breach

Dame Chi Onwurah, the Labour chair of the science, innovation and technology committee, said the breach was ‘another blow to public confidence’

The Independent UK

Air pollution making people in UK get long-term illnesses earlier, study finds

Pollution is ‘silent accelerator that robs individuals of their healthiest years’, say researchers

The Guardian - UK

Confidential health records from UK BioBank project exposed online

Exclusive: Guardian investigation finds data from flagship medical research leaked dozens of times

The Guardian - UK

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The Independent UK

Scientists inch closer to pinprick blood test to detect diseases 10 years before symptoms appear

Findings could help develop early treatment strategies for range of diseases

Evening Standard

Eating fruit could slash effects of air pollution on the lungs, study finds

Researchers from the University of Leicester compared diets, including intake of fruits, vegetables and wholegrains, with lung function.

Euronews

Mass health scan of 100,000 people in the UK could redefine disease diagnosis, scientists say

The trove of data is already revealing early warning signs of conditions like dementia, and confirms that no amount of alcohol is safe for our health.

The Guardian - UK

Full-body scans of 100,000 people could change way diseases are detected and treated

UK Biobank project to share 1bn images of organs, blood vessels and bones to help study ageing and ill health

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The Guardian - UK

UK Biobank is safely sharing health data to drive medical research

Letter: Prof Rory Collins, CEO of UK Biobank, responds to concerns about access to UK patient information, highlighting the safeguards and research benefits

The Independent UK

Half a million UK GP records to become accessible to researchers from China

Intelligence agencies have raised fears about the authoritarian country gathering health data

The Guardian - UK

Revealed: Chinese researchers can access half a million UK GP records

Medical information will be available from UK Biobank, despite western intelligence agencies’ security fears

The Independent UK

Alzheimer’s could be diagnosed 10 years earlier after world’s largest blood proteins study

UK based project could pave way for blood tests to detect diseases years before diagnosis

Evening Standard

World’s largest proteins study ‘invaluable’ for understanding disease – experts

The scaled-up project is backed by a consortium of 14 pharmaceutical firms.

The Independent UK

Largest ever protein study set to revolutionise cancer and dementia tests

Tens of millions of pounds in investment is being provided by the group of firms which includes AstraZenecaa and Pfizer

The Guardian - UK

Concerns raised over access to UK Biobank data after ‘race scientists’ claims

Expert says any suggestion of Human Diversity Foundation accessing sensitive data could affect public trust in science

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