The Latest Breaking News from Sickle Cell Disease

Nottinghamshire families left unaware of babies’ blood test results in second NHS error

About 300 families may not have been told whether children carry trait for genetic disorders such as sickle cell disease

The Guardian - UK · May 11, 2025

Graham Serjeant obituary

Physician and researcher who dedicated his life to the study of sickle cell disease and its variants

The Guardian - UK · Apr 21, 2025

Dangerous 'crises' in sickle cell disease may be amplified by menstrual cycle

In a new study, researchers found that the inflammation behind painful episodes in sickle cell disease are correlated with the menstrual cycle.

LiveScience · Apr 14, 2025

Editas Medicine Presents Data From RUBY Trial At ASH 2024, Showing Reni-Cel Achieves 96% VOE-Free Rate, Sustained Increases In Hemoglobin And Fetal Hemoglobin, And Clinically Meaningful Pain And Function Improvements In Severe Sickle Cell Patients; Safety Profile Consistent With Myeloablative Conditioning

Editas Medicine Reports Updated Clinical Data from the RUBY Trial of Reni-cel in Patients with Severe Sickle Cell Disease at the American Society of Hematology (ASH) Annual MeetingGlobe NewswirePoster presentation at ASH

Benzinga · Dec 9, 2024

Beam Therapeutics Unveils New Safety, Efficacy Data From Sickle Cell Disease Candidate, Stock Gains

Beam Therapeutics unveiled BEAM-101 trial data at ASH, showing improved outcomes in sickle cell patients and promising preclinical BEAM-103 results.

Benzinga · Dec 9, 2024

Black man with sickle cell disease died ‘naked and alone’ in cell after complaining of breathing difficulties

The 43-year-old was found unresponsive in a cell on the healthcare unit at HMP Pentonville on 17 May 2022

The Independent UK · Nov 11, 2024

Health chiefs launch review to tackle ‘poor care’ faced by many young sickle cell disease sufferers

It is estimated that around 300 babies are born in the UK with sickle cell disease each year

The Independent UK · Oct 6, 2024

Sickle Cell Disease: Symptoms, risks and understanding those living with sickle cell disease

Sickle Cell Disease (SCD) is an inherited blood disorder affecting millions worldwide and significantly burdening India's healthcare system. With over 40,000 newborns estimated to have been born with sickle cell anemia in India in 2010, the country ranks second only to Africa in prevalence. Despite advancements in treatment, many patients,…

The Times of India · Jun 19, 2024

Sickle Cell Disease: 5 diet mantras that one must follow

Imagine waking up with the feeling that your body could betray you any time of the day. And, as the day passes, you feel excruciating pain, fatigue, and other debilitating symptoms. While the imagination is harsh, this is a reality to millions of people who are forced to make do…

The Times of India · Jun 19, 2024

How sickle cell disease is a huge burden upon India’s public health

Every year, approximately 150,000 to 200,000 children are born with sickle cell disease in India. India ranks second when it comes to this disease burden and about 50-80 percent of the patients struggle to reach the age of five. According to the Indian Journal of Medical Research, India is home…

The Times of India · Jun 19, 2024