The Latest Breaking News from Sickle Cell Disease

Doctors think they’re drunks or addicts. This ‘warrior’ fights so his disease is understood

KANSAS CITY, Mo. -- Kevin Wake has suffered three strokes. He is only 54. The first one taught him how humiliating an emergency room visit can be for Black people living with the blood disorder sickle cell disease.

Tribune News Service · Mar 14, 2023

Somatic genome editing therapies are becoming a reality – but debate over ethics, equitable access and governance continue

Hundreds of experts from around the world gathered at the Francis Crick Institute in London this week for the Third International Summit on Human Genome Editing.

The Conversation · Mar 10, 2023

Sickle cell patients receiving poor care at NHS hospitals, damning report claims

Brits suffering from sickle cell are suffering such sub-standard treatment in NHS hospitals that they are resisting going in for help despite suffering debilitating pain, a report has claimed

Daily Mirror · Feb 14, 2023

Woman called 999 while in hospital because she thought she 'was going to die'

Ara Emile has claimed that she is "lucky to still be alive" after her two-week-long stay at Princess Alexandra Hospital in Essex where she was receiving treatment for Sickle Cell disease

Daily Mirror · Dec 3, 2022

They endured chronic pain and constant blood transfusions. Now a breakthrough drug has given them a new lease of life

Sickle cell disease sufferers face a lifetime filled with episodes of excruciating pain. But they tell Nadine White and Thomas Kingsley a new treatment has given them fresh hope

The Independent UK · Nov 21, 2022

'I feel cursed by sickle cell disease - my life depends on others coming forward'

Siliana Coelho, who says the pain she can experience is like being repeatedly hit by a hammer, calls for black blood donors to help save her life as NHS Blood and Transplant estimate that 40,000 new black-heritage donors are needed

Daily Mirror · Oct 31, 2022

Woman fighting sickle cell disease says blood donors keep her alive

Social worker Stephanie Danso wants to raise awareness about sickle cell anaemia, a disease that occurs predominantly in people of African and African-Caribbean origin

Daily Mirror · Oct 22, 2022

What is sickle cell disease? Symptoms and treatments

Everything you need to know about sickle cell disease

Evening Standard · Oct 6, 2022

NHS calls for more black blood donors to help treat sickle cell disease

Demand for blood donations to treat the disease has risen by 67 per cent over the past five years

Evening Standard · Oct 6, 2022

What is sickle cell disease? Common symptoms and can it be treated?

Sickle cell disease is a serious and lifelong health condition. Here's everything you need to know about symptoms, causes and what treatment is available for it

Daily Mirror · Oct 6, 2022