A dualistic view of illness doesn’t help those with ME/CFS Letters: Peter White, Trudie Chalder and Michael Sharpe, and Dr Jake Hollis, respond to an article by George Monbiot The Guardian - UK · Oct 22, 2024
Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal There is a city nearby that we hide from view. Its people are of all ages, ethnicities and classes. What unites them is a disease: all are diagnosed with myalgic encephalomyelitis, or ME. The Conversation · Oct 21, 2024
Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? Chronic fatigue syndrome is as physiological as a broken leg. We must learn all we can from this tragic case, says Guardian columnist George Monbiot The Guardian - UK · Oct 18, 2024
Address ‘non-existent’ severe ME care or risk further deaths, UK health minister told Coroner who heard inquest into death of Maeve Boothby O’Neill calls for action to tackle chronic fatigue syndrome The Guardian - UK · Oct 7, 2024
Not a single bed set aside to treat ME in any UK hospital, says NHS director Father of Maeve Boothby O’Neill, who died in 2021, says it is ‘shameful’ that health system is unable to treat the disease The Guardian - UK · Sep 27, 2024
‘I’ve been tired since I was 13’: ME patients hope harrowing inquest will change perceptions Maeve Boothby O’Neill’s parents tell of desperate efforts to find help and their desire to improve treatment for others The Guardian - UK · Aug 10, 2024
What is ME and why is the NHS approach to it being criticised? An inquiry into the death of Maeve Boothby O’Neill, 27, has shown up widespread failures in how the illness is treated The Guardian - UK · Aug 9, 2024
Hugs were too painful for ME patient before she died, mother tells Exeter inquest Maeve Boothby O’Neill, 27, died in October 2021 after becoming so weak she could not sit up, eat or drink The Guardian - UK · Aug 1, 2024
ME patient’s consultant tells inquest staff’s unfamiliarity with condition was ‘unfortunate’ Roderick Warren, who treated Maeve Boothby O’Neill, said there was not enough evidence to establish whether illness is a physical one The Guardian - UK · Jul 25, 2024
NHS wards not capable of treating ME patients, expert tells Exeter inquest Leading ME doctor said he wrote to hospital chief executive after Maeve Boothby O’Neill’s death The Guardian - UK · Jul 23, 2024
Devon woman with ME asked GP to help her ‘get enough food to live’, inquest hears Maeve Boothby O’Neill, 27, was admitted to Royal Devon and Exeter hospital before her death in 2021 The Guardian - UK · Jul 22, 2024