In January 2021, Maeve Boothby O’Neill took stock and summed up her position. “I’ve been tired since I was 13,” she wrote. “When I was 18, I was diagnosed with ME/CFS. I hoped I would finally get treatment and recover my health. I had every potential to be an asset to humanity and hoped and intended to advance the cause of human flourishing.”
Maeve, a bright, diligent, determined young woman, and her loved ones did their best over the years to get help but the treatment – and the fundamental understanding of myalgic encephalomyelitis/chronic fatigue syndrome – just was not available.
