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The Conversation
Chris Ponting, Chair of Medical Bioinformatics, University of Edinburgh

Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal

Lea Aring/German Association for ME/CFS

There is a city nearby that we hide from view. Its people are of all ages, ethnicities and classes. What unites them is a disease: all are diagnosed with myalgic encephalomyelitis, or ME.

We hide them there because we don’t know where else to put them. Like a plague village, we have no plans to treat them, to study their disease or to trial possible drugs for them. We could choose to draw up such plans, to give the residents hope for their future health. But our country’s choice is to turn away and forget about these 250,000-plus inhabitants altogether. A city the size of Brighton that we deliberately ignore.

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