The Latest Breaking News from Action for ME

The key genetic difference ME sufferers have from others – and what it means

Scientists said the findings offer the first robust evidence that genes contribute to a person’s chance of developing the disease

The Independent UK · Aug 6, 2025

People with ME have key genetic differences to other people, study finds

The DecodeME study is described the largest of its kind in the world.

Evening Standard · Aug 6, 2025

Gut bacteria could help diagnose long Covid and chronic fatigue syndrome, researchers find

It is estimated that 404,000 people in the UK have chronic fatigue syndrome or ME, according to Action for ME

The Independent UK · Jul 25, 2025

Women more severely affected by ME, study claims

ME/CFS is estimated to affect more than 250,000 people in the UK, of all ages and from all social and economic backgrounds.

The Independent UK · Aug 23, 2023

'Largest genetic study of ME could finally provide answers around the condition'

Researchers are now inviting people with ME (myalgic ­encephalomyelitis), also known as CFS (chronic fatigue syndrome), to take part in what will be the world’s largest genetic study of the condition, which affects more than 250,000 Brits

Daily Mirror · Nov 13, 2022

People living with ME invited to take part in major genetic study

People who have been diagnosed with myalgic encephalomyelitis (ME) are being invited to take part in the world’s largest genetic study of the…

The National (Scotland) · Sep 12, 2022

People with ME invited to take part in major genetic study

DecodeME aims to reveal the tiny differences in a person’s DNA that can increase their risk of developing the condition.

The Independent UK · Sep 11, 2022