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The Guardian - UK
The Guardian - UK
National
Helen Pidd and Natalie Ktena

‘My mum had to tell me I had HIV’: the former blood transfusion poster boy campaigning for infected victims

Andy Evans posing against garden flowers
Andy Evans co-founded the Tainted Blood campaign in 2006, which pushed for the independent inquiry whose report is due soon. Photograph: Andrew Fox/The Guardian

Andy Evans was 13 when his mum took him for an unexpected drive in the countryside. “I thought: this is weird. Why are we here? We don’t do this,” he remembered. “We sat for a couple of minutes and then she turned to me with tears in her eyes. And she said: ‘Do you know what HIV is?’ And I said: ‘Well, I’ve heard of it … Isn’t it that disease that kills you?’ And she said: ‘Yep, that’s right. It’s been in the factor VIII and you’ve got it.’”

Factor VIII was the concentrated blood clotting protein he had been receiving for his haemophilia since being diagnosed as a baby. Touted as a wonder drug to stop internal bleeding, it was so easy to mix with water and inject with a syringe that Evans was able to administer it himself at home before his fourth birthday.

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