The Latest Breaking News from Teddi Shaw

Cheaper gene screening makes for DNA data dilemma

Cheaper DNA sequencing promises a world of health benefits. But to realise these, careful and sensitive storage of DNA data is vital.

360info · Feb 26, 2023

What is MLD? Girl successfully treated for ‘fatal’ genetic disease

Baby Teddi no longer shows symptoms and there are hopes she will be the first person to be cured of MLD.

Evening Standard · Feb 15, 2023

Heartbreak as one sibling saved using miracle drug, but older sister not eligible for treatment

Teddi Shaw suffers from deadly metachromatic leukodystrophy and had her stem cells removed and the faulty genes replaced

The Independent UK · Feb 15, 2023

Girl with deadly inherited condition is cured with gene therapy on NHS

Teddi Shaw, from Northumberland, first recipient on health service of Libmeldy, world’s most expensive drug

The Guardian - UK · Feb 15, 2023

'Teddi Shaw's treatment would be impossible without NHS - we must fight on to protect it'

'Without our NHS, the only way children like Teddi Shaw would get the lifesaving treatment she's had would be if her parents were millionaires - we must keep fighting for public healthcare'

Daily Mirror · Feb 15, 2023

Toddler becomes first child in UK to receive revolutionary gene therapy

Teddi Shaw suffers from deadly metachromatic leukodystrophy (MLD) but has been given the chance of a normal life.

The Independent UK · Feb 15, 2023