The joy and agony of parents who know one child will be saved but not the other is turning their world upside down.
We will all give praise for an NHS funding a revolutionary £3million one-time treatment to stop little Teddi Shaw, aged 19 months, dying in a few years from a devastating disease that ravages the nervous system and organs.
Teddi’s effectively cured but we also share the family’s heartbreak that the breakthrough is too late for her sister Nala, three, because the disease has inflicted irreversible damage.