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Evening Standard
Evening Standard
World
Nuray Bulbul

What is MLD? Girl successfully treated for ‘fatal’ genetic disease

The most common form of MLD usually develops in babies younger than 30 months

(Picture: PA Archive)

Teddi Shaw has become the first patient in the UK to receive Libmeldy, a medication that treats the genetic flaw at the root of metachromatic leukodystrophy (MLD).

The list price of gene therapy, which replaces a damaged gene within the body's cells, is £2.8 million.

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