Newborns in England now being tested for SMA after Jesy Nelson campaign Testing for the rare genetic condition is being incorporated into the heel prick test The Independent UK · Sep 30
Jesy Nelson calls SMA screening roll-out a ‘postcode lottery’ that ‘isn’t fair’ Nelson campaigned for newborn babies to be screened after her twins, Ocean Jade and Story Monroe Nelson, were diagnosed with the rare condition. Evening Standard · Jun 20
Jesy Nelson ‘proud’ as NHS announces rollout of SMA screening for newborns Former Little Mix star launched campaign after her twins were diagnosed with rare degenerative condition The Independent UK · Apr 2
Jesy Nelson ‘proud’ that SMA screenings to be rolled out in October The singer has campaigned for all babies to be screened for spinal muscular atrophy after her twins were diagnosed with the rare muscle condition. Evening Standard · Apr 1
Scotland becomes first part of UK to screen babies for rare muscle disease All parents will now be offered spinal muscular atrophy screening for their newborns. Evening Standard · Mar 23
Ex-Little Mix star Jesy Nelson becomes patron of SMA UK after twins’ diagnosis The singer took to Instagram to reveal that she has become a patron of the charity. Evening Standard · Feb 17
Calls for SMA screening ignored before Jesy Nelson campaign, say families For those who have spent years trying to raise awareness, Wes Streeting’s intervention is ‘bittersweet’ The Guardian - UK · Jan 11
Scotland becomes first in UK to screen babies for 'devastating' rare condition Scotland is to become the first part of the UK to routinely screen newborn babies for a 'devastating' rare medical condition ... The National (Scotland) · Sep 5, 2025
Scotland first part of the UK to screen babies for ‘devastating’ rare condition From early 2026 it is expected babies born in Scotland will be routinely tested for Spinal Muscular Atrophy. Evening Standard · Sep 5, 2025