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The Latest Breaking News from Giles Lomax

Newborns in England now being tested for SMA after Jesy Nelson campaign

Testing for the rare genetic condition is being incorporated into the heel prick test

The Independent UK · Sep 30

SMA screening to be rolled out for babies across England in ‘victory’ for campaigners

Former Little Mix star Jesy Nelson has been the face of the campaign after her twins were diagnosed

The Independent UK · Jul 15

Jesy Nelson ‘proud’ as NHS announces rollout of SMA screening for newborns

Former Little Mix star launched campaign after her twins were diagnosed with rare degenerative condition

The Independent UK · Apr 2

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Jesy Nelson ‘proud’ that SMA screenings to be rolled out in October

The singer has campaigned for all babies to be screened for spinal muscular atrophy after her twins were diagnosed with the rare muscle condition.

Evening Standard · Apr 1

Scotland becomes first part of UK to screen newborns for spinal muscular atrophy

Campaigners hope pilot will result in heel prick test for rare condition being approved across Britain

The Guardian - UK · Mar 23

What is SMA? The rare genetic condition that Jesy Nelson’s twin daughters have

Former Little Mix star revealed her twin daughters had been diagnosed with Spinal Muscular Atrophy (SMA) Type 1

The Independent UK · Jan 5

‘Patients will suffer’: tales from the frontline of the UK pharma crisis

The pricing standoff between government and industry has stalled research and put thousands of jobs at risk

The Guardian - UK · Oct 30, 2025

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Scotland becomes first in UK to screen babies for 'devastating' rare condition

Scotland is to become the first part of the UK to routinely screen newborn babies for a 'devastating' rare medical condition ...

The National (Scotland) · Sep 5, 2025

Scotland first part of the UK to screen babies for ‘devastating’ rare condition

From early 2026 it is expected babies born in Scotland will be routinely tested for Spinal Muscular Atrophy.

Evening Standard · Sep 5, 2025

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