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The Latest Breaking News from Story Monroe Nelson

All newborns in England to be screened for spinal muscular atrophy from 2027

Campaigners hail ‘landmark moment’ in early detection and treatment of rare muscle-wasting disease

The Guardian - UK · Jul 16

Jesy Nelson says rollout of baby SMA screening is a ‘day of hope’

The former Little Mix singer said a heel prick test could help families affected by the rare condition in future.

The Independent UK · Jul 15

SMA screening to be rolled out for babies across England in ‘victory’ for campaigners

Former Little Mix star Jesy Nelson has been the face of the campaign after her twins were diagnosed

The Independent UK · Jul 15

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Jesy Nelson’s ex-fiancé speaks out about split ahead of new Prime Video series

The documentary series has been billed by Prime Video as a ‘raw and powerful’ look at the Little Mix star

The Independent UK · Jul 15

Jesy Nelson reveals she ‘cried all day’ because twins have to wear spinal jackets and splints in heatwave

Singer’s children were diagnosed with spinal muscular atrophy earlier this year

The Independent UK · Jul 11

Jesy Nelson slams MPs after parliament debate over twins’ disease: ‘I cannot tell you the outrage I feel’

The singer was visibly upset in the near seven-minute video after hearing the public health minister Sharon Hodgson argue against a full SMA screening roll-out

The Independent UK · Jun 23

Jesy Nelson outraged at MPs in emotional video after SMA debate in parliament

The singer, 35, was visibly upset in a video where she accused public health minister Sharon Hodgson of arguing against a full screening roll-out.

Evening Standard · Jun 23

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Jesy Nelson calls SMA screening roll-out a ‘postcode lottery’ that ‘isn’t fair’

Nelson campaigned for newborn babies to be screened after her twins, Ocean Jade and Story Monroe Nelson, were diagnosed with the rare condition.

Evening Standard · Jun 20

Jesy Nelson celebrates twins first birthday and champions SMA screenings

IN FULL

The Independent UK · May 15

Jesy Nelson shares heartfelt tribute to her ‘fighter’ twins on first birthday

The singer’s twins Ocean Jade and Story Monroe Nelson were both diagnosed SMA1

The Independent UK · May 15

Jesy Nelson marks her twins’ first birthday: ‘What a milestone to reach’

The singer, 34, announced earlier this year that her twins Ocean Jade and Story Monroe Nelson were diagnosed SMA1 (spinal muscular atrophy).

Evening Standard · May 15

Hundreds more children to get ‘life-changing’ SMA treatments on NHS following Jesy Nelson campaign

Nelson has campaigned for screening to be rolled out after her twins were diagnosed with the condition

The Independent UK · May 13

Hundreds of thousands of babies to receive SMA screening as part of new study

Singer Jesy Nelson has campaigned for screening to be rolled out after her twins were diagnosed with the condition.

Evening Standard · May 12

Why Jesy Nelson visited 10 Downing Street amid twin daughters’ health struggles

IN FULL

The Independent UK · Apr 21

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The Independent UK · Apr 21

Little Mix star Jesy Nelson takes SMA baby health check campaign to Downing Street

The singer has since dedicated herself to raising awareness of SMA after her twin daughters were born with the condition

Evening Standard · Apr 21

Jesy Nelson visits 10 Downing Street amid SMA campaign

The singer is raising awareness of SMA (spinal muscular atrophy) after her twins’ diagnoses.

Evening Standard · Apr 19

Jesy Nelson offers £10,000 reward as car containing her twins’ hospital equipment stolen

Former Little Mix singer offers reward after saying her Land Rover Defender was stolen from outside her home

Evening Standard · Apr 19

Jesy Nelson says car containing medical equipment for twin girls with SMA stolen

The singer appealed for help locating the vehicle on Instagram, saying the equipment was needed by her twins Ocean Jade and Story Monroe Nelson.

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The Independent UK · Apr 2

Jesy Nelson ‘proud’ as NHS announces rollout of SMA screening for newborns

Former Little Mix star launched campaign after her twins were diagnosed with rare degenerative condition

Evening Standard · Apr 1

Jesy Nelson ‘proud’ that SMA screenings to be rolled out in October

The singer has campaigned for all babies to be screened for spinal muscular atrophy after her twins were diagnosed with the rare muscle condition.

The Independent UK · Mar 23

Former Little Mix star ‘bittersweet’ after SMA screening decision

IN FULL

The Independent UK · Mar 23

Jesy Nelson speaks out after fresh news on condition that affects her twin daughters

Nelson announced earlier this year that her twins, Ocean Jade and Story Monroe Nelson, were diagnosed with spinal muscular atrophy

Evening Standard · Mar 23

Jesy Nelson ‘bittersweet’ after Scotland becomes first to screen babies for SMA

The singer announced earlier this year that her twins, Ocean Jade and Story Monroe Nelson, were diagnosed with spinal muscular atrophy.

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