The Latest Breaking News from ROHHAD

Scots charity founder is 'victim of smear campaign' over fundraising calendar

Lisa French, who runs ROHHAD Association, says there has been a backlash over “empowering” body positive charity calendars - one featuring men and another featuring women.

Daily Record · Oct 11, 2022

Youngster with rare disorder fronts campaign supported by Robert Downey Jnr in urgent bids for funds

Aaron Hunter, 12, lives with ROHHAD – a rare, life-threatening condition that severely impacts quality of life – has fronted fundraising campaigns. His mum Lisa now warns that research into finding a cure will run dry without more funding.

Glasgow Live · Apr 14, 2022

Mum of brave Alexandria youngster fighting rare condition warns more funding for research is needed

Lisa French, who runs ROHHAD Association which her son Aaron is battling, says the charity will need to raise around £300,000 for fundraising to continue into finding a cure.

Daily Record · Apr 12, 2022