The mum of a brave Vale youngster warns research into finding a cure for a rare disorder he suffers from will grind to a halt unless more funding is secured.
Lisa French, who runs ROHHAD Association, says the charity will need to raise around £300,000 for fundraising to continue into finding a cure.
Her son Aaron Hunter, 12, has ROHHAD – a rare, life-threatening condition that severely impacts quality of life.
