Most parents will have anxieties when their child is born, usually about how to change a nappy or if they're raising them right. Only in extreme cases would you ever worry that your baby might pass away, but for the Bowyer family this fear is very real.
Sadie Bowyer has congenital central hypoventilation syndrome (CCHS) – an extremely rare condition that only affects around 1,200 children worldwide.
While the six-year-old has perfectly healthy lungs, her autonomic nervous system doesn't function properly – meaning at any moment she can "forget to breathe".
