Get all your news in one place.
100's of premium titles.
One app.
Start reading
The Guardian - UK
The Guardian - UK
Politics
Tobi Thomas Health and inequalities correspondent

‘I have this shadow over me’: lupus patients share their experiences living with the disease

Juliet Saffrey looking out of a window
‘I was in shock’: Juliet Saffrey. Photograph: Jill Mead/The Guardian

When Juliet Saffrey from London was diagnosed with lupus she was in the prime of her life, aged 24. “When I received my diagnosis in 2000 … up until that point I felt invincible,” Saffrey, now 49, says. “ I was travelling two or three times a year, I had bought a new car. I was just having the time of my life in my early 20s.”

Saffrey’s diagnosis came after she experienced symptoms such as extreme fatigue, to the point where she was falling asleep at work, as well as joint pains, headaches, and mouth ulcers. But fortunately, her GP immediately suspected lupus when Saffrey presented those symptoms and she received her diagnosis relatively quickly. “Having been diagnosed, I remember thinking: how is this going to change my life? I was in shock, thinking one minute I’m invisible and the next minute I’m not. I now have this illness, this shadow over me.”

Sign up to read this article
Read news from 100's of titles, curated specifically for you.
Already a member? Sign in here
Related Stories
Top stories on inkl right now
One subscription that gives you access to news from hundreds of sites
Already a member? Sign in here
Our Picks
Fourteen days free
Download the app
One app. One membership.
100+ trusted global sources.