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Belfast Live
Belfast Live
Entertainment
Sheena McStravick

Co Down boy living with condition affecting just 700 people worldwide

Just 24 hours after being welcomed into the world, little Robbie Trimble began taking seizures, causing him to hold his breath and turn an alarming shade of blue/grey.

It wasn't until he was three months old, that his terrified parents Stacey and John were told that Robbie suffered from a genetic mutation called KCNQ2, also known as Early Onset Developmental and Epileptic Encephalopathy.

The Rathfriland tot is one of only 700 cases of the condition known worldwide.

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