Just 24 hours after being welcomed into the world, little Robbie Trimble began taking seizures, causing him to hold his breath and turn an alarming shade of blue/grey.
It wasn't until he was three months old, that his terrified parents Stacey and John were told that Robbie suffered from a genetic mutation called KCNQ2, also known as Early Onset Developmental and Epileptic Encephalopathy.
The Rathfriland tot is one of only 700 cases of the condition known worldwide.