A West Lothian man whose life has been turned upside down by long covid hopes a new pilot scheme will help him and others in the same situation.
Greig Brown (44) from Armadale, has been admitted to hospital twice after contracting covid in 2021.
Once a keen runner and cyclist, Greig now lives with the symptoms of long covid, suffering from severe breathing difficulties and memory loss.
He has not been able to return to his job as a joiner at St John’s Hospital in Livingston, and he fears he will never regain the health and fitness he once had.
Greig lives in Armadale, with his partner, Sam.
Their plans to marry are up in the air as they have had to use their savings while Greig has been off long-term sick.
He says: “This is my reality. I am so breathless and exhausted every day that simply getting downstairs and settled on the couch wipes me out.
“I used to walk miles every day around the hospital, carrying tools and anything else I needed. Now I can’t even walk to the kitchen without needing to sit down.
“My GPs kept telling me Long Covid is all new to them, too, and they don’t know how to treat it.
“I feel as if people like me have fallen through the cracks. I hope having a system in place like this NHS Lothian pilot that lets doctors refer patients directly to the CHSS support service can make a real difference to everyone living with long covid symptoms.”
Chest Heart and Stroke Scotland is working with NHS Lothian and Pogo Digital Healthcare to deliver a ground-breaking digital platform that brings primary care and third sector services seamlessly together for the first time.
The platform, called ‘MyTailoredTalks’, has been developed by Pogo Digital Healthcare and has been jointly funded by NHS Lothian, CHSS and the NHS Lothian Charity (formerly Edinburgh and Lothians Health Foundation) – with £120,000 invested in the platform so far.
It will allow GPs and other clinicians to refer patients automatically to the CHSS’s long covid support services and to provide tailored self-management information to patients.
Over 70 patients are taking part in the pilot across 26 GP practices in the region.
The team behind the project is appealing for partners to expand the ground-breaking innovation beyond Lothian so that everyone with Long Covid in Scotland can get better access to support.
Allan Cowie, interim chief executive at Chest Heart & Stroke Scotland, said: “For the past two years we’ve been campaigning alongside people living with Long Covid to ensure that systems are in place to help them easily access the care and support they desperately need.
“This system has the potential to transform access to wraparound care through GP services. It has been developed with clinicians and people with long covid and we want it to be adopted right across the country as soon as possible.
“It not only makes this process easier for people living with Long Covid, but it helps to alleviate some of the pressure that primary care is under by allowing clinicians to easily refer their patients into a service they can trust.”
Health Secretary Humza Yousaf welcomed the project. He said: “Chest Heart & Stroke Scotland’s Long Covid support service not only supports people living with long covid, but also helps reduce some of the pressure on NHS services. That is why we have funded and continue to support Chest Heart and Stroke Scotland to deliver a Long Covid Support Service.
“I welcome this collaboration and investment. This kind of digital innovation is just one example of the flexible way in which our NHS boards across Scotland are adapting to meet the needs of people with Long Covid. We are spending £3m this year to support NHS boards like NHS Lothian to develop and deliver the best models of care appropriate for their local population’s needs.
“I look forward to seeing the full results of the pilot exercise and we are committed to working closely with Chest Heart & Stroke Scotland share the learning generated from it to support the sustainability of our health services.”
Professor Tim Walsh, Director of Innovation for NHS Lothian, added: “This project shows what can be achieved by the NHS, patients, charities and digital expertise working closely together to find innovative solutions.
“The personalised ‘tailored talks’ have been designed to provide trusted ‘bite sized’ information for patients to access whenever they need to and be able to share with family or friends.
“We hope that these, together with the holistic support CHSS offer, will make a real difference to people living with long covid.”
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