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The Guardian - UK
The Guardian - UK
Politics
Tobi Thomas Health and inequalities correspondent

UK sickle cell patients ‘get worse care than sufferers of similar disorders’

United Kingdom Disease Sickle Cell Disease NHS
A close up of blood cells, two round and one sickle-shaped
Sickle cell disease, which mainly affects people from an African-Caribbean background, changes the shape of blood cells, hindering blood flow. Photograph: Cultura Creative Ltd/Alamy

People living with sickle cell disease face substandard care as its treatment significantly lags behind advances relating to other genetic disorders such as cystic fibrosis, a report has found.

The study, commissioned by the NHS Race and Health Observatory and carried out by researchers at Imperial College London, analysed various measures of care for sickle cell disease between 2010 and 2024, including clinical trials, approved drugs and reviews of existing studies.

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