Ventorina Aculu, a mother of eight in her 60s, says she is proud to have given birth to her many children. Her distress only set in with her last two, both sons and now adults. Omac Alfred and Kibwota Johnson, both in their 20s, began to show signs of a rare disease in their infancy — a little understood neurologic condition characterized by repetitive head nodding and accompanied by a raft of other grave symptoms — which has now haunted the family for two decades.
"I don't know what I am treating. They have been on medication, but their situation has continued to deteriorate year in and out due to a worsening health condition," she told Undark. "When one goes to the hospital or gets medication, the goal is to see change, but with me here, I don't see any."
