Managing a chronic health condition is often a full-time job. Still, for Valerie (valeriesvoice), a Texas resident living with a rare eye condition, it just became an exercise in frustration. She shares snippets of her life with Keratoglobus on Instagram and TikTok. After a recent health spiral, she made an appointment with a doctor but wanted to see him sooner than her October appointment. So, about three weeks ago, she called his clinic.
In her post, Valerie noted that she wanted to see her specialist sooner than her scheduled follow-up in October. The doctor, she claimed, was “the Supreme” of his field, and he dictated her daily care that her local doctors carried out. Despite his importance to her care, the office didn’t cooperate. She described the situation, saying, “Doctor’s offices be like we’re gonna commit psychological warfare against you and then we’re gonna label you a problematic patient.”