Imagine walking into a room and feeling every pair of eyes land on you before you’ve said a single word. Not because of what you’re wearing or who you’re with, but because of something you were born with, something you’ve spent your whole life explaining to strangers who almost always get it wrong.
For the estimated 16,000 Americans living with some form of ichthyosis, a rare genetic skin condition with no cure, that’s just a Tuesday. But for 18-year-old Portia Cina, who has one of the rarest forms on the planet, one unexpected moment of going viral changed the conversation entirely.
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