New Delhi: The Supreme Court on Thursday mulled setting up a corpus fund to treat people suffering from Spinal Muscular Atrophy (SMA), a rare and debilitating genetic disorder.
A bench of Chief Justice Surya Kant and Justices Joymalya Bagchi and V Mohana, while hearing a suo motu case, pointed out that individual charity and ad hoc government grants are insufficient and what is needed is a permanent, regularised channel to finance life-saving therapies.
