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Evening Standard
Evening Standard
Science
Jane Kirby

Parents whose sons are losing ability to walk face ‘nightmare’ battle with NHS

NHS Arabella Evelina

Parents whose sons are losing the ability to walk have described the “nightmare” battle they face with the NHS to access a free drug.

The medicine givinostat can slow progress of Duchenne muscular dystrophy – keeping children on their feet for longer – and is being offered for free by a drug firm while it goes through the process of NHS approval.

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