Nottingham parents have issued a message of hope after their child was diagnosed with a rare and 'devastating' disease. Shagufta Asghar, 35, and her husband Derek Deidrick, 46, from Nottingham, were told their seven-week-old son Raheem had the rare liver disease biliary atresia in August 2021.
Raheem's mum spoke of their fright as hospital medics rushed to diagnose and treat the baby's condition, which results from a blockage in the tubes that carry bile from the liver to the gallbladder, last year. “This came shortly after an earlier diagnosis of a heart condition and rare chromosome deletion so it was really devastating,” Shagufta said.
"When he was born the following day a midwife said he looked very jaundiced, but I had no idea anything was wrong. She told me to look out for signs like him not waking up for a feed, so I took him to A&E when that happened.
