A family has spoken of their agony after bringing their boy with a rare condition home to die.
Milo Browne, from North Shields, suffers from a rare degenerative condition so unique it is known only as M3BHA and there is no diagnosis.
The condition causes Milo to suffer from seizure and respiratory problems and he is unable to talk or eat, sit or stand without being fully supported meaning he needs 24-hour care.
