Myles Hughes is just one of around 120 children in the world with a life-threatening condition so rare that doctors can't predict what the future holds for him. Mum Georgia Hughes has one hope for him, that he will make it to his teenage years.
Georgia was thrilled when Myles was born in 2019, and at first she didn't think much about doctor's concerns over issues that were picked up in a routine examination, wanting to focus on her "new little bundle of joy". However things started to change quickly, and Myles ended up needing an operation.
The first thing doctors flagged up was that Myles had a "clunky hip" and his feet were turned upwards. The nurses also said he had what they thought was glue ear.
