A mum wants to make her daughter's last summer special after she was given an incredibly rare diagnosis.
Fay Elliott, originally from St Helens, became pregnant with her second child, Maisie, in 2021, but early on in the pregnancy the mum was told something wasn't right. Doctors told the 27-year-old that her daughter was too small throughout the pregnancy, and there were issues with the blood flow to the baby.
The severity of Maisie's condition became clear after she was born weighing just two pounds, and was whisked away by doctors. Following genetic tests, it was discovered that the newborn has Galloway Mowat syndrome - a rare genetic condition characterised by neurological abnormalities and early onset progressive kidney disease - making her only the fifth case in the world.
