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Irish Mirror
Irish Mirror
National
John Kierans

Mum of boy with rare life-threatening illness devastated as miracle drug to give child a normal life pulled

Little Charlie O’Keeffe is a born fighter. The seven-year-old has battled cystic fibrosis – Ireland’s most common genetically-inherited disease – since he was a baby.

His body mass index – a marker of the disease’s severity – got so low he needed a feeding tube so he could put on weight.

Parents Sarah and Mark O’Keeffe have to watch him closely all the time.

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