The heartbroken parents of a little Leeds girl diagnosed with a rare form of childhood dementia have pledged to make as many memories as possible for he -including seeing the ocean and Christmas lights, before she goes blind.
Connie Annakin, six, from Farsley, suffers daily seizures and is losing the ability to walk or talk, after she was diagnosed with Battens Disease three years ago. Her devastated parents Caroline and Rob were told most children diagnosed with the condition pass away between the ages of six and ten.
There is no cure for Connie's condition, but her parents were told of a revolutionary treatment that could halt the regression of most of her abilities, but it wasn’t available on the NHS.
