Faye Condon from Plymouth underwent six rounds of chemotherapy, starting at the age of seven, for a rare autoimmune disease she never had. In 2019, when Faye was five, she diagnosed with Juvenile Dermatomyositis by doctors at Bristol Children's Hospital, but latest tests showed she has de novo Emery-Dreifuss muscular dystrophy type 2, which has no treatment currently.
After seven years of enduring chemotherapy, which included home injections and muscle biopsies, Faye received the correct diagnosis after her mother Christina Condon's efforts for more tests resulted in a referral to the Great Ormond Street Hospital.
