A mother and father are campaigning to raise awareness of a rare condition that their little girl has been diagnosed with. Carrie and Adam Podmore’s daughter, Penny, has up to 40 seizures per day due to the condition.
Their four-year-old daughter suffers from Dravet Syndrome, which is a rare, life-limiting form of epilepsy. June is officially Dravet Syndrome awareness month as the condition affects around one in every 15,000 live births, Yorkshire Live reports. On average she can have one seizure every 36 minutes.
It causes individuals to have seizures day and night and has a higher risk of death than other forms of epilepsy. Dravet Syndrome is one of the most common forms of genetic epilepsy and is also the most treatment resistant.
