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The Guardian - UK
The Guardian - UK
Science
John Naughton

Genetic data is another asset to be exploited – beware who has yours

The 23andMe booth at a genealogical event in Salt Lake City, Utah, 2019.
The 23andMe booth at a genealogical event in Salt Lake City, Utah, 2019. Photograph: George Frey/Reuters

Ever thought of having your genome sequenced? Me neither. But it seems that at least 15 million souls have gone in for it and are delighted to know that they have Viking ancestry, or discombobulated to find that they have siblings of whom they were hitherto unaware. The corporate vehicle that enabled these revelations is called 23andMe, which describes itself as a “genetics-led consumer healthcare and biotechnology company empowering a healthier future”.

Back in the day, 23andMe was one of those vaunted “unicorns” (privately held startups valued at more than $1bn), but is now facing harder times. Its share price had fallen precipitately following a data breach in October 2023 that harvested the profile and ethnicity data of 6.9 million users – including name, profile photo, birth year, location, family surnames, grandparents’ birthplaces, ethnicity estimates and mitochondrial DNA – and there have been internal disagreements between its board and the CEO and co-founder, Anne Wojcicki. So on 24 March it filed for so-called Chapter 11 proceedings in a US bankruptcy court in Missouri.

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