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Andrew Whitehouse, Bennett Chair of Autism, Telethon Kids Institute, The University of Western Australia

From deficits to a spectrum, thinking around autism has changed. Now there are calls for a 'profound autism' diagnosis

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A heated debate about autism was reignited after the recent publication of an article advocating for use of the term “profound autism”.

This term is not an official part of the autism diagnosis. But the 2021 Lancet Commission on autism – part the journal’s program to gather expertise on pressing global health and science issues – argued the term should refer to people with a diagnosis of autism who have very high support needs, such as 24-hour care for basic needs and safety. The Lancet Commission estimated that around 20% of autistic people meet criteria for “profound autism”.

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