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Wales Online
Wales Online
Mel King & Neil Shaw

Family's frightening diagnosis after boy, four, starts having seizures every day

A four-year-old boy having seizures every day which last anything from 20 seconds to five minutes has been diagnosed with a rare brain tumour. Julius Jones, 4, was diagnosed with the tumour this year after suffering his first seizure on April 5 but it has so far been resistant to medication.

Julius will need to have brain surgery to remove the tumour. His mum, Clare, said: "When Julius was first diagnosed, we felt numb, really, really numb. It was a complete shock, I just couldn't believe what I was hearing. It felt like I was having an out-of-body experience when they said the word 'tumour'. I couldn't eat for two weeks after the diagnosis, I just felt very vulnerable - it's life-altering and like a bomb had been dropped on you

"Honestly, I just thought he was going to die because it was a tumour in his brain and it's a lot more complicated. I did so much research and contacted researchers abroad - I just tried to get as much information as I could.

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