The parents of a child with an extremely rare condition have told how their daughter could end up 'frozen in her own body.' Little Lexi's mum and dad left a council chamber in tears when they learned they are one less hurdle away from building a house to protect their two-year-old daughter.
Knocks, bumps and even minor trauma such as injections could have a devastating impact on Lexi's health, as her body replaces broken muscle and tissue with bone. Her rare genetic condition called Fibrodysplasia Ossificans Progressiva (FOP), which affects around one in two million people, means she could become paralysed, and any injuries could speed up its onset.
After a planning case that began shortly after Lexi was born, the Hertfordshire tot and her family could soon move into a new bungalow complete with wheelchair access, a safe wetroom to prevent slips and falls, and a hydrotherapy pool which is "critical" to her treatment, HertsLive reports.
