Epilepsy is one of the most common serious neurological conditions in the world, affecting around 600,000 people across the UK, according to the latest figures from Epilepsy Action. The charity also highlights how almost one in 100 people in the UK have epilepsy, with around 87 people being diagnosed every day.
Epilepsy is a condition that affects the brain and can start at any age, but this usually happens either in childhood or in people over 60. When someone has epilepsy, it means they have a tendency to have epileptic seizures - anyone can have a one-off seizure, but this doesn’t always mean they have epilepsy.
There are many different types of epilepsy and some last for a limited time and the person eventually stops having seizures, but for many, epilepsy is a life-long condition. As a result, they could be eligible for support through Personal Independence Payment (PIP) or Adult Disability Payment (ADP), the benefit replacing PIP in Scotland.
if you have epilepsy and are over State Pension age, you may be eligible for Attendance Allowance, a benefit providing support of either £247.40 or £369.60 every four weeks - find out more here.
The latest figures released by the Department for Work and Pensions (DWP) and Social Security Scotland show that at the end of April, there were over three million people claiming PIP and ADP - some 322, 387 living in Scotland.
They also show that 49,678 people are receiving support through PIP, including 5,489 Scots.
Successful PIP or ADP claimants receive between £24.45 and £156.90 each week and as the benefit is paid every four weeks, this amounts to between £97.80 and £627.60 every payment period.
Below is a simplified guide to the terminology used by the DWP, with an explanation of the elements involved in a claim including components, rates and how the application is scored, which in turn determines the level of award a person receives.
If you’re in Scotland, find out more about Adult Disability Payment here.
We also have a dedicated section on the Daily Record website which offers help in understanding the process from start to finish and includes questions on the form, what happens during an assessment and a comprehensive breakdown of the questions you will need to answer - these and more can be found here.
What is PIP?
PIP is a benefit which is gradually replacing DLA.
If you need extra help because of an illness, disability or mental health condition you could be eligible for PIP.
You will be assessed by a health professional to work out the level of help you can get and your rate will be reviewed to make sure you are getting the right support.
Who is eligible for PIP?
To be eligible for PIP, you must have a health condition or disability where you:
have had difficulties with daily living or getting around (or both) for 3 months
expect these difficulties to continue for at least 9 months
You usually need to have lived in the UK for at least two of the last three years and be in the country when you apply.
In addition to what we have outlined above if you get or need help with any of the following because of your condition, you should consider applying for PIP - or Adult Disability Payment, depending on where you live.
- preparing, cooking or eating food
- managing your medication
- washing, bathing or using the toilet
- dressing and undressing
- engaging and communicating with other people
- reading and understanding written information
- making decisions about money
- planning a journey or following a route
- moving around
There are different rules if you are terminally ill, you will find these on the GOV.UK website here.
The DWP will assess how difficult you find daily living and mobility tasks. For each task they will look at:
- whether you can do it safely
- how long it takes you
- how often your condition affects this activity
- whether you need help to do it, from a person or using extra equipment
How is PIP paid?
PIP is usually paid every four weeks unless you are terminally ill, in which case it is paid weekly.
PIP will be paid directly into your bank, building society or credit union account.
Adult Disability Payment will be paid at the same rates as PIP.
What are the PIP payment rates?
You will need an assessment to work out the level of financial help you will receive and your rate will be regularly reviewed to make sure you are getting the right support.
PIP is made up of two components:
Daily living
Mobility
Whether you get one or both of these and how much depends on how severely your condition affects you.
You will be paid the following amounts per week depending on your circumstances:
Daily living
Standard rate: £61.85
Enhanced rate: £92.40
Mobility
Standard rate: £24.45
Enhanced rate: £64.50
How you are assessed
You will be assessed by an independent healthcare professional to help the DWP determine the level of financial support, if any, you need.
Face-to-face consultations for health-related benefits are offered alongside video calls, telephone and paper-based assessments - it's important to be aware that there is no choice here, it's up to the health professional and DWP.
Adult Disability Payment assessments will not involve face-to-face assessments, unless this is preferred by the claimant - find out more about the changes here.
You can find out more about DWP PIP assessments here.
How do you make a claim for PIP?
You can make a new claim by contacting the DWP, you will find all the information you need to apply on the GOV.UK website here.
Before you call, you will need:
your contact details
your date of birth
your National Insurance number - this is on letters about tax, pensions and benefits
your bank or building society account number and sort code
your doctor or health worker’s name, address and telephone number
dates and addresses for any time you’ve spent abroad, in a care home or hospital
Once you have contacted the DWP, they will send you a document to complete which consists of 14 questions. This includes space for any additional information you feel is relevant to your claim.
The questions focus on how your condition affects you, so put as much detail in as you can to help the assessor understand your physical or mental health needs.
If you have difficulty filling in your form or understanding the questions, contact your local council and ask for help or Citizens Advice Scotland.
We have a breakdown of all 14 questions here and you can take an anonymous self-test online at Benefits and Work to see how many points you would be awarded for each response.
There is also an online PIP toolkit with examples of all the questions to help you answer fully with the most relevant information, find out more about this here.
Even if you don't qualify for financial support, you could be eligible for a National Entitlement Travel Card, which offers free or reduced travel across Scotland on most public transport links.
For more information about PIP, visit GOV.UK here.
Are you eligible for Carer’s Allowance?
You may be eligible for weekly Carer’s Allowance payments of £69.70 if you, the person you care for and the type of care you provide meets certain criteria. The money is paid every four weeks, so you could be eligible for £278.80 each pay period.
You do not have to be related to, or live with, the person you care for.
The person you care for must already get one of these benefits:
Personal Independence Payment (PIP) - daily living component
Disability Living Allowance (DLA) - the middle or highest care rate
Attendance Allowance
Constant Attendance Allowance at or above the normal maximum rate with an Industrial Injuries Disablement Benefit
Constant Attendance Allowance at the basic (full day) rate with a War Disablement Pension
Armed Forces Independence Payment
If someone else also cares for the same person as you, only one of you can claim Carer’s Allowance.
The type of care you provide
You need to spend at least 35 hours a week caring for someone.
This can include:
helping with washing and cooking
taking the person you care for to a doctor’s appointment
helping with household tasks, like managing bills and shopping
Eligibility
Guidance on GOV.UK states that all of the following must apply:
You are 16 or over
You spend at least 35 hours a week caring for someone
You have been in Scotland for at least two of the last three years (this does not apply if you’re a refugee or have humanitarian protection status)
You are not in full-time education
You are not studying for 21 hours a week or more
You are not subject to immigration control
Your earnings are £128 or less a week after tax, National Insurance and expenses
How do I make a claim for Carer's Allowance?
You can claim online at the GOV.UK website here or phone the Carer’s Allowance Unit for a claim form on 0800 731 0297.
Before you apply make sure you have your:
National Insurance number (if you have a partner you’ll need theirs too)
Bank or building society details
Employment details and latest payslip if you’re working
P45 if you’ve recently finished work
Course details if you’re studying
Details of any expenses, for example pension contributions or the cost of caring for your children or the disabled person while you’re at work
GOV.UK guidance states that you also need details of the person you care for.
You need their:
Date of birth and address
National Insurance number if they are 16 or over
Disability Living Allowance reference if they are under 16
More help and advice about Carer's Allowance
You can get more help and advice from:
Find out more about claiming Carer’s Allowance on the Gov.uk website here.
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