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The Guardian - UK
The Guardian - UK
World
Patrick Barkham

As my daughter got sicker and sicker, our quest for answers dragged on. How did we all miss the bacteria taking over her body?

Girl in pink jumper and jeans, holding a dachshund, leafy trees behind her
‘It’s difficult to think of the future right now’: Milly with family dog Betty. Photograph: Ali Smith/The Guardian

There are many reasons to feel guilty. I’m a nature writer who preaches about the importance of wild childhoods, and my daughter has been made chronically ill by one trip to the countryside. I’m a journalist whose job it is to interrogate information and yet I didn’t demand better answers for her from NHS doctors. But the guilt is most painful when I remember a freezing wet day in October 2021.

Milly’s U10s football club were playing the league’s top team. Milly, player of the year the previous season, a whirl of blond energy across the pitch, had lost her enthusiasm for the beautiful game. That morning, she really didn’t want to play: she was tearful and exhausted. There was nothing obviously wrong: no cough, sickness, temperature. Her twin, Esme, was playing but without Milly the team were a player short. I told Milly they needed her. Stoic, she staggered off but couldn’t step on to the pitch. Instead, she curled into a ball of misery and fatigue beside her coach. The rain fell. Her team lost 15-1.

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