Autism researchers and advocates are pushing back against the creation of an autism database – meant to track the health of autistic people in a major research study – and pointing to the ways such databases could be misused.
While the US Department of Health and Human Services (HHS) denies it’s a registry, the agency did confirm a sweeping database of autistic people will power a $50m study on autism. The health secretary, Robert F Kennedy Jr, said last week that he plans to announce results from the study within months.
