Style and comfort have always been of equal priority for me. I got my first pair of Converse All Stars at the mall in Indiana in the 1980s. They were teal and yellow – I would fold the lip of the hi-top over to show off the lemony interior. For my wedding, I wore low-top leather Converse with my white dress. I’ve walked across cities from Rome to Mumbai, Chicago to Oslo – all while wearing Converse, or Fly London boots – looking for vintage one-offs and secondhand gems, clothes made to last.
In 2021, aged 41, I was diagnosed with Parkinson’s, a degenerative disease that resulted in symptoms including difficulty moving, especially walking. Dystonia is a common symptom for those of us with young onset Parkinson’s; it involves the involuntary and painful twisting of parts of the body. In my case, dystonia occurs in my back, hands, feet and ankles. When my medications aren’t working, or when I’m tired – and more so as the disease progresses – this drastically curtails my mobility and dexterity. My toes grip the earth, my ankles frequently and painfully roll, sometimes I stumble and nearly or actually fall. It is mentally and physically exhausting, and the pain can take my breath away.
