The Latest Breaking News from Scottish Huntington Association

Scottish footballer opens up on facing incurable brain condition

Robbie McNab knows that one day he will likely be faced with the challenge of dealing with Huntington’s disease.

The National (Scotland) · Oct 3, 2023

Edinburgh dad fundraises while knowing he’s at risk of incurable disease

A semi-retired Edinburgh dad took on the London Marathon with his daughter, raising funds for the Scottish Huntington’s Association after his father died from the genetic disease at the age of 47.

Edinburgh Live · May 2, 2023

Edinburgh family open up incredible 'ghost garden' to raise funds for charity

Kim Herkes and her family go all out to celebrate Hallowe’en every year by transforming their back garden into a haunted horror fest with zombies, vampires, skulls, pumpkins and scary skeletons lurking in the shadows.

Edinburgh Live · Oct 25, 2022

Teen who could inherit devastating disease sings and dances his way through life with support from Paisley charity

A teenager, who could inherit his dad's incurable Huntington's disease, uses music to live life to the full

Daily Record · May 30, 2022

Inspirational teen vows to keep dancing in face of possible incurable disease diagnosis

William Hillhouse, from East Kilbride, was told there is 50% chance that he has inherited Huntington's Disease from his dad that could see him lose the ability to walk, talk and eat.

Glasgow Live · May 29, 2022

Scots mum fears passing ‘killer gene’ onto sons after losing father to Huntington’s disease

Dina De Sousa, a retired Edinburgh University researcher, has opened up after discovering she carries the faulty gene which causes the devastating condition and has vowed to raise awareness.

Daily Record · May 3, 2022

Edinburgh mum diagnosed with Huntingdon's fears she will pass it onto her sons

Dina De Sousa, a mum-of-two, was tested for the gene that causes the devastating condition shortly after she lost her father to the disease following a sudden diagnosis.

Edinburgh Live · May 3, 2022

Casualty star invites Scots Huntington’s Disease warrior to be extra on hit show

Actor George Rainsford has struck up a friendship with Scots Huntington's warrior Gillian.

Daily Record · May 3, 2022

Casualty star gives inspirational Lanarkshire mum's fundraiser a shot in the arm

Actor George Rainsford from TV hospital drama Casualty has rallied the cast to dance to the tune of Gillian McNab.

Daily Record · May 3, 2022