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The Latest Breaking News from MND Association

Health secretary accused of failing to act on shortages of motor neurone disease drug

Exclusive: Shortages of riluzole, which can delay the onset of ventilator dependence, were flagged to DHSC in September

The Guardian - UK

Kevin Sinfield on running for Rob Burrow and MND: ‘It’s why I’m on this Earth’

The rugby league legend will run seven ultra-marathons in seven days in support of Motor Neurone Disease charities and his inspirational friend and former teammate Rob Burrow

The Independent UK

‘Targeted help needed for those choosing between heat and medical equipment’

The MND Association said some people cut back on their use of assistive equipment in the past 12 months in response to rising energy costs.

The Independent UK

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Shaun Wane to stay on as England boss for 2025 Rugby League World Cup

Ex-Wigan coach Shaun Wane's future as international boss was under doubt after disappointing World Cup semi-final exit against Samoa but his deal's now been extended until 2025 while Stuart Barrow takes charge of women's side and Tom Coyd carries on for World Cup-winning wheelchair team

Daily Mirror

Rob Burrow's new racehorse ready to run after recovering from minor injury

Beep Beep Burrow, who will help raise money for the ex-rugby league star diagnosed with motor neurone disease in 2019, will make his belated debut at Doncaster on Saturday

Daily Mirror

Brave dad 'with brilliant sense of humour' dies with family by his side

Justin Hammond was paralysed from his neck down but always remained "upbeat" and "positive"

Liverpool Echo

Doddie Weir: What is motor neurone disease?

The Scottish former international is among several rugby players diagnosed with the disease in recent years.

The Independent UK

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Kevin Sinfield to embark on ‘toughest challenge yet’ in third MND charity run

Sinfield’s previous two challenges have raised more than £5m

The Independent UK

Rugby legends hail Motor Neurone Disease breakthrough that 'will bring hope to thousands'

A breakthrough in MND treatment has been described as 'remarkable’ as rugby greats Doddie Weir and Rob Burrow - both diagnosed with the condition - say there is hope for the future

Daily Mirror

Darlington mum-of-two with devastating MND to take on Great North Run in wheelchair

Taking on the Great North Run together is just the latest way Flo and Ross Campbell are fighting her terrifying motor neurone disease diagnosis and helping the search for a cure for the thus-far incurable condition.

Chronicle Live

Len Johnrose dead: Ex-footballer dies aged 52 after motor neurone disease battle

Former Burnley, Blackburn, Swansea and Hartlepool midfielder Len Johnrose's passing aged 52 was confirmed on Monday following a five-year battle with motor neurone disease

Daily Mirror

Tributes paid to former Bury player Len Johnrose who has died after battle with motor neurone disease

The former footballer launched a campaign to help raise awareness and funds to tackle MND

Manchester Evening News

Len Johnrose: Former Burnley and Blackburn midfielder dies after MND battle

Johnrose helped raise funds and awareness for the condition and campaigned for greater player safety measures

The Independent UK

Former footballer Len Johnrose dies aged 52 after MND battle

Johnrose helped raise funds and awareness for the condition and campaigned for greater player safety measures.

The Independent UK

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The Independent UK

Leeds to wear kit designed by Rob Burrow’s children

The Super League club say £5 from the sale of every shirt will be donated to the MND Association.

Daily Mirror

Kevin Sinfield: It's humbling to win this award but I won't stop until we find a cure

Rugby league legend turned Leicester coach honoured by Rugby Players' Association after raising almost £5m for MND Association

Wales Online

Devastated dad's heart-breaking diagnosis after pain from 'trapped nerve' in foot

Chris Thurston was actually suffering from foot drop, which is an early signal of incurable Motor Neurone Disease

Daily Mirror

Dad who thought he tripped up due to 'trapped nerve' handed 'devastating' diagnosis

Chris Thurston, 42, from Wirral, Merseyside, thought he was suffering with a trapped nerve until doctors revealed it was an early sign of a devastating incurable condition

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Liverpool Echo

Football mad dad's life changed forever after tripping on left foot

Chris Thurston, 42, thought his symptoms were caused by a "trapped nerve" when he started to struggle with his balance

Liverpool Echo

Laughing may be early sign of fatal condition and when to visit GP

Struggling to stop yourself from laughing or crying in inappropriate situations could be a symptom

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