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The Latest Breaking News from Epilepsy

Some people with epilepsy find relief with CBD — but the market is murky

The federal government has legalized cannabidiol (CBD). The FDA also has approved one cannabis-derived prescription drug, Epidiolex, for three rare seizure conditions.

Inverse

Krystal learned to walk and talk again after major brain surgery ... but one dream awaits

Krystal Bourke opens up on brain surgery, mental health, and the chance to fulfil a childhood dream.

Newcastle Herald

Silent, subtle and unseen: How seizures happen and why they're hard to diagnose

The dramatic and incapacitating nature of seizures is reflected in the word itself, which derives from the Greek “to take hold” – like an invisible force suddenly grasping someone and controlling their body. This sense of an unknown force has driven many superstitions and misrepresentations of seizures throughout history.

The Conversation

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Watchdog fines Pfizer and Flynn £70m for overcharging NHS for epilepsy drug

Penalties come after an in-depth investigation carried out by the Competition and Markets Authority

The Guardian - UK

Lifestyle: Do you know your brain's neurons function even in sleep?

A unique study of brain activity in the cerebral cortex of epilepsy patients found there was a robust response to sound during sleep that largely mirrored the brain's response during wakefulness. Read more on Dynamite News:

Dynamite News

NUH neurology patients facing waits of 'months if not years' due to lack of staff

People with conditions such as Parkinson's, epilepsy and Motor Neurone Disease are affected

Nottingham Post

Gateshead cannabis farmer who claimed the drug helped his epilepsy jailed

Barry Gray, of Bensham, had 71 plants at various stages of growth when police raided his home

Chronicle Live

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'Our son may get end-of-life care if we can't afford £1,200 of medical cannabis'

Bailey relies on unlicensed medicinal cannabis that costs his family £1,200 a month - which they struggled to find when money was tight during the Covid-19 pandemic

Daily Mirror

Celixir20: ‘Torment’ for families as access to medicinal cannabis product in doubt

One mother said the next six months will be a ‘huge torment’ after officials said access to Celixir20 will last at least until the end of the year

The Independent UK

‘Torment’ for families as access to medicinal cannabis product in doubt

One mother said the next six months will be a ‘huge torment’ after officials said access to Celixir20 will last at least until the end of the year

The Independent UK

'I slept on A&E floor during 18-hour wait and was sent home without any treatment'

Alicja Wojtowicz, claims she spent 18 uncomfortable hours in the waiting room at Royal Shrewsbury Hospitalbefore being told to leave without treatment - despite her needing a test to check for possible epilepsy.

Daily Mirror

'I slept on the floor during my traumatic 18-hour stay in A&E only to be sent home without treatment'

Alicja Wojtowicz, 46, still has no idea why she suffered a sudden seizure as no inpatient beds were available

Wales Online

EXCLUSIVE: Medical Marijuana, Inc. Subsidiary HempMeds Working With Argentine Research Hospital On CBD For Adult Epilepsy

Medical Marijuana, Inc. (OTC: MJNA), the first publicly-traded cannabis company to launch cannabis-derived nutraceutical products, brands, and supply chains announced that its subsidiary HempMeds is collaborating with Hospital del Cruce to conduct a study in Argentina on the efficiency of CBD

Benzinga

Edinburgh mum launches charity to support families meet crippling medical costs

Karen Gray's son, Murray Gray, suffers from a rare form of intractable epilepsy and the family has had to fork out around £14,000 a year to meet the cost of life saving treatments.

Edinburgh Live

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Daily Mirror

'We put £100k on credit cards and sold our home to pay for daughter's cannabis oil'

Mum and full-time carer Elaine Levy, 63, sold her family home to continue paying for daughter Fallon's medicinal cannabis oil which manage her intractable epilepsy seizures

Wales Online

Girl, 4, suffers from rare condition which causes her to have more than 40 seizures per day

Penny, aged 4, suffers from Dravet Syndrome

Daily Record

Devastated couple have resuscitated young daughter's 'limp and lifeless body' over 100 times

Paige Slocombe, aged nine, has spent four years suffering from seizures every two weeks as a result of a rare condition.

Benzinga

UK Leading The Way In Medical Cannabis Research

Since 2018, doctors in the UK have been recommending medical cannabis for several health conditions, such as chronic pain, anxiety, post-traumatic stress disorder, insomnia and childhood epilepsy.

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news in one place.

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Daily Mirror

Disabled woman now housebound as cost of living crisis means she can't charge wheelchair

Jade Cotton, who has cerebral palsy, epilepsy and scoliosis, is struggling to cope with soaring electric bills and has been forced to stop charging her electric wheelchair overnight

Edinburgh Live

Edinburgh man suffering from epilepsy joins call for more specialist nurses in Scotland

A man from Edinburgh suffering from epilepsy has called for more specialist nurses in Scotland admitting they are "essential" in helping those who suffer with the condition.

The National (Scotland)

Charity group stresses importance of epilepsy specialist nurses in Scotland

Charities are urging for more specialist epilepsy nurses to join the field in Scotland, calling them a “lifeline” for people suffering with the…

Chronicle Live

Missing pensioner Anthony Grigor found safe and well

The vulnerable pensioner has fortunately now been located

Benzinga

Why Did HC Wainwright Downgrade Addex Therapeutics

Last week, Addex Therapeutics Ltd (NASDAQ:ADXN) terminated the Phase 2b/3 study evaluating dipraglurant as a potential treatment for dyskinesia associated with Parkinson's disease (PD-LID) due to the slow rate of patient recruitment. Addex is suspending its financial guidance. Hence HC Wainwright downgraded its rating to Neutral from Buy without a price target, as dipraglurant…

Benzinga

The Daily Biotech Pulse: F-Star Therapeutics Buyout, Orphan Drug Tag For VBI's Brain Cancer Vaccine, Xenon's Epilepsy Candidate Shows Promise

Here's a roundup of top developments in the biotech space over the last 24 hours:

Benzinga

Xenon's Epilepsy Candidate Rapidly Reduces Focal Onset Seizure Frequency

Xenon Pharmaceuticals Inc (NASDAQ:XENE) announced new efficacy data supporting the Phase 3 development of XEN1101. XEN1101 rapidly reduced focal onset seizure frequency within one week for all doses compared with placebo. At Week 1, the median percent reduction in monthly focal onset seizure frequency was 55.4% in the 25 mg group, 41.5% (20…

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