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The Latest Breaking News from Epilepsy

Edinburgh mum launches charity to support families meet crippling medical costs

Karen Gray's son, Murray Gray, suffers from a rare form of intractable epilepsy and the family has had to fork out around £14,000 a year to meet the cost of life saving treatments.

Edinburgh Live

'We put £100k on credit cards and sold our home to pay for daughter's cannabis oil'

Mum and full-time carer Elaine Levy, 63, sold her family home to continue paying for daughter Fallon's medicinal cannabis oil which manage her intractable epilepsy seizures

Daily Mirror

Girl, 4, suffers from rare condition which causes her to have more than 40 seizures per day

Penny, aged 4, suffers from Dravet Syndrome

Wales Online

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Devastated couple have resuscitated young daughter's 'limp and lifeless body' over 100 times

Paige Slocombe, aged nine, has spent four years suffering from seizures every two weeks as a result of a rare condition.

Daily Record

UK Leading The Way In Medical Cannabis Research

Since 2018, doctors in the UK have been recommending medical cannabis for several health conditions, such as chronic pain, anxiety, post-traumatic stress disorder, insomnia and childhood epilepsy.

Benzinga

Disabled woman now housebound as cost of living crisis means she can't charge wheelchair

Jade Cotton, who has cerebral palsy, epilepsy and scoliosis, is struggling to cope with soaring electric bills and has been forced to stop charging her electric wheelchair overnight

Daily Mirror

Edinburgh man suffering from epilepsy joins call for more specialist nurses in Scotland

A man from Edinburgh suffering from epilepsy has called for more specialist nurses in Scotland admitting they are "essential" in helping those who suffer with the condition.

Edinburgh Live

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Charity group stresses importance of epilepsy specialist nurses in Scotland

Charities are urging for more specialist epilepsy nurses to join the field in Scotland, calling them a “lifeline” for people suffering with the…

The National (Scotland)

Missing pensioner Anthony Grigor found safe and well

The vulnerable pensioner has fortunately now been located

Chronicle Live

Why Did HC Wainwright Downgrade Addex Therapeutics

Last week, Addex Therapeutics Ltd (NASDAQ:ADXN) terminated the Phase 2b/3 study evaluating dipraglurant as a potential treatment for dyskinesia associated with Parkinson's disease (PD-LID) due to the slow rate of patient recruitment. Addex is suspending its financial guidance. Hence HC Wainwright downgraded its rating to Neutral from Buy without a price target, as dipraglurant…

Benzinga

The Daily Biotech Pulse: F-Star Therapeutics Buyout, Orphan Drug Tag For VBI's Brain Cancer Vaccine, Xenon's Epilepsy Candidate Shows Promise

Here's a roundup of top developments in the biotech space over the last 24 hours:

Benzinga

Xenon's Epilepsy Candidate Rapidly Reduces Focal Onset Seizure Frequency

Xenon Pharmaceuticals Inc (NASDAQ:XENE) announced new efficacy data supporting the Phase 3 development of XEN1101. XEN1101 rapidly reduced focal onset seizure frequency within one week for all doses compared with placebo. At Week 1, the median percent reduction in monthly focal onset seizure frequency was 55.4% in the 25 mg group, 41.5% (20…

Benzinga

Struggling Scottish man forced to give up pet as he can no longer afford bills

John O'hare suffers from epilepsy and a chronic lung condition that has forced him to shield for the past two years in his flat. He will soon be forced to give up his beloved pet tortoise as bills make it impossible to keep

Edinburgh Live

Misdiagnosed teenager was told her diabetes was actually epilepsy 'caused by hormones'

One lady has opened up about life with diabetes

Nottingham Post

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Daily Record

Lanarkshire golfers help drive foundation to £100k for epilepsy charity

This year's tournament in memory of 11-year-old Natalie Hughes raised more than £13,000.

Benzinga

Addex Stops Parkinson's-Associated Dyskinesia Trial - Read Here Why

Addex Therapeutics Ltd (NASDAQ:ADXN) has terminated the Phase 2b/3 study of dipraglurant for dyskinesia associated with Parkinson's disease (PD-LID) due to the slow recruitment of patients. Data readout from the trial was expected in 1H of 2023. The company attributes this to the consequences of COVID-19-related patient concerns about participation in studies, staffing…

The Conversation

Time in hospital sets back tens of thousands of children's learning each year, but targeted support can help them catch up

NAPLAN scores can tell us about a child’s learning, but can they also help us to support learners who have had a serious injury or a long-term chronic illness like asthma or epilepsy?

The National (Scotland)

People with epilepsy in ‘urgent need’ of better care, says report

NEW research has revealed people with epilepsy in Scotland are facing declining services and extensive waiting times for specialist care.

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Glasgow Live

Glasgow schoolgirl who suffers up to 300 seizures a day 'robbed of her childhood'

Olivia McCafferty has Doose Syndrome, a very debilitating form of childhood epilepsy. It can cause loss of consciousness, which has seen the eight-year-old suffer serious falls that have left her black and blue.

Daily Record

Mum of little Scots girl who suffers 300 seizures a day says daughter 'robbed of childhood'

Schoolgirl Olivia McCafferty, from Glasgow, has been left wheelchair-bound due to her childhood epilepsy.

Wales Online

Mum's call to help 'forgotten children' get easier access to medical cannabis on NHS

Charlotte Caldwell said many families are having to seek private health care to get a prescription

The Independent UK

Ease process for accessing medical cannabis, urges mother of boy with epilepsy

Charlotte Caldwell said many families are having to seek private health care to get a prescription.

Daily Record

Cross-party support for Lanarkshire schoolboy at first Holyrood debate on medical cannabis access but health minister's absence was 'kick in the teeth'

East Kilbride MSP Collette Stevenson and members of the cross-party group on medicinal cannabis called on the Scottish Government to help break down the legal barriers facing desperate parents of children with drug resistant epilepsy.

Daily Mirror

Epileptic mum accused of being drunk and has purse stolen as she has seizure in street

Rhiain Mort, 37, from Liverpool, has been called "a drunk", told she's "faking it" and once was even mugged, while having an epileptic seizure in the street

Wales Online

Mum left in tears at concert after medic called her a 'liar' due to 'hidden disability'

O2 Academy is investigating the incident

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