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The Latest Breaking News from Epilepsy

People with epilepsy in ‘urgent need’ of better care, says report

NEW research has revealed people with epilepsy in Scotland are facing declining services and extensive waiting times for specialist care.

The National (Scotland)

Glasgow schoolgirl who suffers up to 300 seizures a day 'robbed of her childhood'

Olivia McCafferty has Doose Syndrome, a very debilitating form of childhood epilepsy. It can cause loss of consciousness, which has seen the eight-year-old suffer serious falls that have left her black and blue.

Glasgow Live

Mum of little Scots girl who suffers 300 seizures a day says daughter 'robbed of childhood'

Schoolgirl Olivia McCafferty, from Glasgow, has been left wheelchair-bound due to her childhood epilepsy.

Daily Record

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Mum's call to help 'forgotten children' get easier access to medical cannabis on NHS

Charlotte Caldwell said many families are having to seek private health care to get a prescription

Wales Online

Ease process for accessing medical cannabis, urges mother of boy with epilepsy

Charlotte Caldwell said many families are having to seek private health care to get a prescription.

The Independent UK

Cross-party support for Lanarkshire schoolboy at first Holyrood debate on medical cannabis access but health minister's absence was 'kick in the teeth'

East Kilbride MSP Collette Stevenson and members of the cross-party group on medicinal cannabis called on the Scottish Government to help break down the legal barriers facing desperate parents of children with drug resistant epilepsy.

Daily Record

Epileptic mum accused of being drunk and has purse stolen as she has seizure in street

Rhiain Mort, 37, from Liverpool, has been called "a drunk", told she's "faking it" and once was even mugged, while having an epileptic seizure in the street

Daily Mirror

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Mum left in tears at concert after medic called her a 'liar' due to 'hidden disability'

O2 Academy is investigating the incident

Wales Online

Woman has purse stolen while having a seizure in the street - and is accused of being drunk

"I have been subjected to nasty comments and abusive behaviours when I have had seizures in public, people have even accused me of faking it"

Manchester Evening News

Epileptic mum accused of being drunk and targeted by thieves while having seizure in street

Rhiain Mort said she has received "nasty comments" and abuse from people

Liverpool Echo

Woman, 19, found dead in pool just weeks after being diagnosed with fatal condition

Kailah May, described as a "beautiful soul", had recently been diagnosed with epilepsy and was told by doctors she should not swim because it would put her at risk

Daily Mirror

Agoraphobic burglar who had fatal stroke in Northumberland prison was not monitored by healthcare staff

Darren Davidson, 46, lost his life at HMP Northumberland on June 25 last year

Chronicle Live

Edinburgh mum fundraising in memory of much-loved daughter who died age 36

Zoe Smith raised around £17,500 for charity throughout her life and was well loved by a variety of organisations across Scotland for her selfless and kind nature.

Edinburgh Live

Death of woman with epilepsy may be re-examined after Diane Stewart case

Exclusive: mother of Emily Whelan hopes tests that helped prove Stewart was murdered may shed light on daughter’s death

The Guardian - UK

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Chronicle Live

Little boy's bad dreams turned out to be epilepsy - now he has around 40 seizures a day

Five-year-old Ethan Cavenagh needs protective headwear to support him when he falls

Benzinga

Sanofi To Pay €400K As Compensation For Epilepsy Drug-Related Side Effects

A French court has ordered Sanofi SA (NASDAQ: SNY) to pay more than €400,000 in damages to a French family whose child had autism caused by its epilepsy drug Valproate.

Belfast Live

Family reflect on huge hole in their lives after teenager's sudden death

"There has been a hole in every gathering without him."

Wales Online

Mum puts on brave face for her daughter's wedding after tumour diagnosis the day before

Kelly Doran had a seizure the previous month, but it was put down to childhood epilepsy

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Liverpool Echo

Sick mum pretended she was fine at daughter's wedding

Kelly was first told she had epilepsy before she was told that she had a brain tumour

The Independent UK

Inquest hears of ‘missed opportunties’ in Gaia Pope-Sutherland’s care

The teenager, who had severe epilepsy, was found dead near cliffs 11 days after she went missing from her home in Dorset in November 2017

The Independent UK

Psychiatrist tells inquest of ‘regret’ over Gaia Pope-Sutherland’s discharge

Dr Peter Jeffery completed a Mental Health Act assessment in October 2017 after the 19-year-old’s worried family took her to hospital

Liverpool Echo

Woman who opposed disabled sister getting covid vaccine overruled in court

The woman, who has epilepsy and learning difficulties, will now be offered the jab

The Guardian - UK

Gaia Pope: doctor tells inquest of ‘failure of communication’ within NHS

Neurologist who treated Dorset teenager before her death in 2017 says he was not told when her mental health had declined

The Independent UK

‘Lack of communication’ affected teenager’s NHS care, inquest hears

Gaia Pope-Sutherland, 19, was reported missing from her home in Swanage, Dorset, in November 2017 and found dead 11 days later

Tribune News Service

Mayo Clinic Minute: Using lasers on the brain to treat seizures

For roughly a third of people with epilepsy, medication does not control their seizures. Depending on where those seizures originate in the brain, laser therapy can be an option for adults and children.

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