Surgeons use new technique to save life of little boy with rare condition Conor O’Rourke, who is now three, was part of a rare subgroup of patients which made his condition essentially untreatable. The Independent UK · Aug 7, 2025
Doctor’s comment about head size led to one in a million diagnosis for baby boy Conor O’Rourke’s mother took him to see a specialist about a potential issue with his belly button. The Independent UK · Aug 7, 2025
How baby’s head size led to rare medical diagnosis His mother said the experience was ‘terrifying’ and the couple felt ‘helpless’ The Independent UK · Aug 7, 2025