Severe endometriosis means Alexandra Bennett, of Torquay, cannot work fulltime, even in a remote role. Flexible online jobs are highly competitive. And when she has previously told a potential employer of the disability accommodations she would need, she says she didn’t get that job.
Bennett, who was diagnosed at 18 after spending her teenage years in increasing pain, says she has lost work because of frequent hospital appointments and illness. As her stage four endometriosis has affected her mobility, she uses a walking stick and wheelchair, and lives with daily pain, incontinence and extreme fatigue. When we speak, she is preparing for her fifth surgery, a hysterectomy, which she says will not cure her endometriosis.
